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Support and Training Officer
prader-willi syndrome association

Job Description

We are seeking an additional member for our amazing Support and Training Team, to provide advice, support, information, and training to people with PWS, their families and carers, professionals and the general public.

Main Responsibilities and Duties

Support

  • To provide telephone, email and Facebook support and advice on all aspects of Prader-Willi Syndrome to people with PWS, their families and carers, professionals and the general public.
  • To provide support and mediation, where appropriate, in times of crisis.
  • To attend PWS Multi-Disciplinary Clinics and contribute to the organisation of Familynet events, together with other members of the Support Team.

Information

  • To contribute to the provision of information provided by PWSA UK.
  • To work with the Support Team Manager to ensure that all PWSA UK information is up to date, reflects the latest thinking and techniques and is presented in a stakeholder friendly format.
  • To work with the Support Team Manager to identify and facilitate new information to meet the needs of all people with PWS, their families and carers, professionals, and the general public.
  • To contribute to a rolling programme of reviewing and updating all PWSA UK Information.
  • To keep up to date on all knowledge and developments relating to Prader-Willi Syndrome and its’ management and to reflect those changes to all PWSA UK information channels.
  • To keep up to date with all changes in government policy and legislation and reflect those changes to all PWSA UK information channels.
  • To contribute to all conference provision offered by PWSA UK.

Training

  • To contribute to the provision of all training offered by PWSA UK.
  • To contribute to the content of all training courses so that they reflect the best practice, the latest techniques and research in PWS and are fully appropriate for the needs of all working with people with PWS.

The client requests no contact from agencies or media sales.