Job Description

The Prader-Willi Syndrome Association UK is seeking a strong strategic leader with a fundamental belief in the potential and value of people with Prader-Willi Syndrome and a desire to serve the wider community. 

The Prader-Willi Syndrome Association exists to represent and support the entire Prader-Willi Syndrome community.  This rare, complex genetic disorder currently has no cure and we wish to ensure that every member of our community has access to high quality care, opportunity and support. We are passionate about promoting awareness, building knowledge and furthering research so that the challenges of Prader-Will Syndrome can be overcome.  In serving this community we are guided by the principle of “nothing about us without us”, which puts our community at the heart of everything we do.

The Prader-Willi Syndrome Association UK is seeking a strong strategic leader with a fundamental belief in the potential and value of people with Prader-Willi Syndrome and a desire to serve the wider community.  We are looking for someone with a proven record of commanding trust, respect and confidence to lead our small but highly skilled team.  You will have the experience and ability to turn strategy into operational delivery and in so doing, deliver life changing support to our community.  This is an exciting opportunity for someone with vision, creativity and ambition to drive our organisation to the next level and to deliver the strategic direction of the Trustees.