Job Description

We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).

The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.

This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.

We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.

The Ideal Candidate for this role will have:

- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters

- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters

- Experience in managing effective and creative fundraising communications on social media and the website

- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities 

- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas

This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.

The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team.  We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.

Salary £27k - £34k PA dependent on experience

Upload a CV and covering letter to apply

Apply by: Friday 15th December

Interviews for this role will take place on Monday 22nd December