Job Description

The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. We invest in cutting-edge research, drive up standards of clinical care, offer support for everyone affected by cystic fibrosis, and campaign hard on the issues that matter.

You will be providing leadership for the Cystic Fibrosis Trust’s Data team, building upon the success of the UK Cystic Fibrosis Registry, and in line with the overarching strategic priorities of the charity. You will work with partners to ensure data is used to enable people with CF to access safe, effective and quality care. With the Registry as a lynch pin, you will oversee the collection, curation and utilisation of clinical, patient reported outcomes and experience data, as well as NHS administrative, education, social deprivation, and environmental data.

Benefits include 30 days annual leave and opportunities for learning and development.

Closing date for completed application will be midday on Monday 10 June 2019. interviews will be held on the Tuesday 25 June.