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Charity Director
Headlines Craniofacial Support

Job Description

Headlines Craniofacial Support is recruiting its first Charity Director to embed a revised mission for the organisation and provide inspirational leadership.  Are you a senior manager looking for a new challenge and can you proactively lead the growth of a small charity, supporting children and adults born with rare craniofacial conditions particularly craniosynostosis,  into a nationally recognised organisation?

Headlines Craniofacial Support is a UK-based registered charity that provides a range of information, advice and support to individuals and families affected by craniosynostosis and other rare craniofacial conditions.

Around 350 children are born with craniosynostosis each year in the UK. Craniosynostosis is a condition where two or more of the plates in the skull fuse prematurely, and it requires cranial surgical intervention from a young age. Syndromic craniosynostosis which includes conditions such as Apert, Crouzon and Pfeiffer Syndromes are even rarer and leads to additional complications including facial differences, physical, hearing and sometimes learning disabilities, and often the need for extensive further surgery.

Headlines has over 1,600 members who receive regular newsletters, access to events such as the Family Weekend, Conference and Day Outs, Headline News magazine, access to private social media groups, and helpline advice.

A new position has arisen due to the growth of the charity, to help lead the charity’s activities and further development.

Key Responsibilities

As the senior executive with day-to-day responsibility for the charity and staff, the Charity Director of Headlines Craniofacial Support will also work closely with the Chair and Trustee Board to provide leadership and operational management of the charity. Specifically, he/she will:

  • Ensure effective leadership and management of Headlines in liaison with the Chair and Trustees
  • Work with the Trustees to deliver the new 5-year strategy, and operational plan and long-term goals for Headlines
  • Identify opportunities, and develop policies and projects to enhance and expand the work of Headlines
  • Be responsible for generating significant funds through innovative and cost-effective fundraising activities in order to maintain the long-term success of the charity
  • Manage and enhance the event programme to meet the objectives of raising awareness and funds
  • Develop opportunities for collaborative working and partnerships with other organisations for the benefit of people with craniosynostosis and rare craniofacial conditions
  • Oversee communications and marketing activities in order to raise the profile of Headlines, its work and the needs of its members
  • Provide day-to-day management of Headlines staff and activities
  • Manage and motivate Headlines staff, setting objectives in line with the operational plan and monitoring staff performance
  • Ensure effective financial management of Headlines working closely with the Treasurer
  • Ensuring compliance with safeguarding, data protection and other legal requirements and responsibilities
  • Be responsible for developing and sustaining a culture of achievement and accountability
  • Be the face of the charity liaising with members, health professionals and with wider community

Terms of employment

Salary: £30,000 for 3 days per week, depending on experience (£50,000 FTE)

Pension: Employer pays 3% towards statutory minimum contribution

Holiday: 25 days per annum (plus public holidays), pro rata

Hours: Part-time, 3 days per week, Mon-Fri plus occasional weekends due to events

Location: Home-based, Greater London/South-East preferred

Full details including personal specification and application requirements can be found in the attached job description.

Closing date for applications: Friday 10th August 2018

The client requests no contact from agencies or media sales.